糖尿病黃斑部水腫之病患旅程與關鍵角色分析

Abstract

糖尿病作為全球範疇內的重要健康議題，對全球醫療系統和藥物行銷策略具有深遠影響。糖尿病所衍生的併發症，不僅使得疾病管理日益複雜，並且對患者的生活質素帶來顯著影響。在此之中，糖尿病視網膜病變及糖尿病黃斑部水腫成為主要的關注重點。在藥品行銷策略的制定過程中，必須考量到這些疾病的獨特性，以及患者在疾病治療旅程中所面臨的需求與痛點。 本研究著眼於糖尿病黃斑部水腫的治療探討，並透過病患旅程地圖的運用，以設計出符合患者需求與醫療標準的服務，旨在提升患者的治療效益以及生活品質。糖尿病黃斑部水腫作為一種普遍的視網膜疾病，其治療過程十分複雜，並需長期的追蹤和管理。因此，本研究主要集中在糖尿病黃斑部水腫的治療過程中，包括患者的需求與期待、疾病認知以及他們所承受的心理壓力等。 本研究運用質性研究方法，透過深度訪談和焦點團體討論，收集患者和醫護人員的意見和建議。研究結果指出，患者需要的是個人化和患者為中心的護理，並需要更多的心理與社會支持。此外，患者對疾病的認知和理解程度也影響他們的治療效果和生活品質。因此，本研究提出了一種病患旅程地圖的應用模型，以協助醫護人員更深入了解患者的需求與期待，並提供更個人化和以患者為中心的護理。本研究也提出一些具體建議，以協助醫護人員進行更有效的溝通和協調，以提升患者的治療效果和生活品質。 研究結果強調，患者對疾病的認知和理解程度是影響治療效果和生活品質的重要因素。因此，本研究提出了一些具體的建議，以協助醫護人員更有效地向患者進行衛教和溝通。例如，醫護人員可以用簡單易懂的語言和圖像，向患者解釋疾病的原因、治療方法和預後等資訊。此外，醫護人員還可以透過多種途徑，如手機應用程式、網站、社交媒體等，向患者提供更便捷和個性化的衛教和支援。 研究結果也指出，患者需要更多的心理和社會支持，以應對治療過程中的壓力和困難。因此，本研究提出了一些具體的建議，以協助醫護人員更有效地提供心理和社會支持。例如，醫護人員可以透過心理輔導、社會工作等方式，幫助患者應對治療過程中的壓力和困難。此外，醫護人員還可以透過建立患者支援小組、提供社區資源等方式，為患者提供更全面和個人化的支援。

Diabetes, as a global health concern, profoundly impacts the global healthcare system and pharmaceutical marketing strategies. Complications arising from diabetes not only complicate disease management but significantly affect patients’ quality of life. In this regard, diabetic retinopathy and diabetic macular edema have emerged as the primary points of concern. The unique characteristics of these diseases, along with the needs and pain points patients encounter throughout their treatment journey, must be considered in the formulation of pharmaceutical marketing strategies. This study focuses on the treatment of diabetic macular edema and applies the concept of a patient journey map to design services that meet patient needs and medical standards. This aims to enhance the treatment outcomes and quality of life for patients. Diabetic macular edema, as a common retinal disease, involves a complex treatment process that requires long-term follow-up and management. Hence, this research mainly concentrates on various aspects within the treatment journey of diabetic macular edema, including patients' needs and expectations, disease awareness, and the psychological stress they endure. Through qualitative research methods, in-depth interviews, and focus group discussions, this study collects opinions and suggestions from patients and healthcare providers. The findings suggest that patients require personalized, patient-centered care and greater psychological and social support. Moreover, the degree of patients' disease understanding impacts their treatment outcomes and quality of life. Consequently, this study proposes an application model of a patient journey map to assist healthcare providers in better understanding patients' needs and expectations and to provide more personalized and patient-centered care. Furthermore, this research offers specific recommendations to help healthcare providers enhance their communication and coordination, thereby improving patient treatment outcomes and quality of life. The study emphasizes that patients' understanding of the disease is a critical factor affecting treatment outcomes and quality of life. Thus, specific recommendations are proposed to help healthcare providers educate and communicate more effectively with patients. For example, healthcare providers can use simple language and images to explain the causes of the disease, treatment methods, and prognosis. In addition, through various channels such as mobile apps, websites, and social media, healthcare providers can offer more convenient and personalized education and support to patients. The study also indicates that patients require more psychological and social support to cope with stress and difficulties during the treatment process. Accordingly, this study suggests specific recommendations to aid healthcare providers in providing better psychological and social support. For instance, healthcare providers can use counseling and social work to help patients cope with stress and difficulties during the treatment process. Additionally, by establishing patient support groups and providing community resources, healthcare providers can offer more comprehensive and personalized support.