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| DC 欄位 | 值 | 語言 |
|---|---|---|
| dc.contributor.advisor | 古允文 | zh_TW |
| dc.contributor.advisor | Yeun-Wen Ku | en |
| dc.contributor.author | 袁修文 | zh_TW |
| dc.contributor.author | Esabella Hsiu-Wen Yuan | en |
| dc.date.accessioned | 2023-07-19T16:25:15Z | - |
| dc.date.available | 2023-11-10 | - |
| dc.date.copyright | 2023-07-19 | - |
| dc.date.issued | 2023 | - |
| dc.date.submitted | 2023-06-06 | - |
| dc.identifier.citation | Afzelius, A., Plantin, L. & Östman, A. (2017) Children of Parents with Serious Mental Illness: The Perspective of Social Workers. Social Work in Action, 29(4), 293-310.
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| dc.identifier.uri | http://tdr.lib.ntu.edu.tw/jspui/handle/123456789/87774 | - |
| dc.description.abstract | 對孩子來說出於愛、義務與責任照顧父母及滿足家庭的需求是非常自然的。孩子參與照顧父母的事實，大多被隱藏在社區中。自90年代，西方文獻對於兒少家庭照顧者的弱勢處境，特別是在照顧父母已有相當多的研究。然而，臺灣對於兒少承擔照顧者的角色，未被理解的需求仍顯相對缺乏。此研究目的在探討臺灣參與者童年時期照顧精神疾病父母的經驗。研究架構以社會排除理論為主，融合社會建構理論，著重在兒少家庭照顧者和他們的家庭，所感受精神疾病的社會汙名，導致他們身處在被忽視與社會隔絕的環境。本研究採用質性-回溯研究方法，了解兒少家庭照顧者成長、陪伴精神疾病父母的完整童年經驗。十九位參與者參與半結構式的深入訪談，以主題式分析方法完成研究結果分析，呈現四大主題。主題一：探討孩子成為兒少家庭照顧者的經驗，伴隨四個次主題：覺察父母的精神疾病、承擔照顧責任、家人關係和學校生活。主題二：了解精神疾病父母對其影響，伴隨五個次主題：苦樂參半的記憶、感覺童年生活分崩瓦解、健康與福祉、因應策略和長期照顧的承諾。主題三：兒少家庭照顧者所期望的社會支持，伴隨三個次主題：醫療資訊、心理暨社會服務、學校支持和公共教育。主題四：昔日兒少家庭照顧者給予現在兒少家庭照顧者的忠告。最後，統整研究發現如何回應研究問題，與相關文獻對話討論，呈現本研究的獨特觀點，並提出研究發現對於實務和政策的建議及未來研究方向。 | zh_TW |
| dc.description.abstract | It is natural for children to support their parents’ care out of love, reciprocity, responsibility as well as family demands. Incidents of children being involved in parental care are often in hidden contexts within the community. The vulnerabilities of young carers, in particular engaging parental mental care, have been well-documented in Western countries since the 1990s. However, research on young carers assuming a caring role alone with unrecognized needs seems relatively limited in Taiwan. This study aims to explore the experiences of participants who had cared for a parent with mental illness during childhood in Taiwan. The research framework is mainly constructed by social exclusion in addition to social constructionism, in light of young carers and their families and their perceptions of social criticisms attached to mental illness, as a result of living in hidden contexts. The study is based on the qualitative methods, and taking a retrospective stance to ascertain the comprehensive experiences of young carers growing up with a mentally ill parent through childhood. A total of nineteen participants took part in the semi-structured interviews, which emerged four themes analyzed by thematic analysis. Theme 1 discusses about the experiences of children becoming young carers with four subthemes emerging from research data: the awareness of the parent’s mental illness, undertaking caring responsibilities, family relationships, and school life. Theme 2 investigates the impact of having a parent with mental illness with five subthemes emerging: bittersweet memories, feelings of childhood life falling apart, health and well-being, coping strategies, and a long-term caring commitment. Theme 3 underlines young carers’ wishes for social support with three subthemes: medical information, mental health and social services, and school support and public education. Theme 4 sheds light on former young carers’ advice for current young carers. Finally, the study concludes with a discussion of the study findings in relation to the research questions and previous literature, and provides the unique insights into the experiences of these populations. The implications of the study findings for practice and policy contexts, and suggestions for further research are also indicated. | en |
| dc.description.provenance | Submitted by admin ntu (admin@lib.ntu.edu.tw) on 2023-07-19T16:25:14Z No. of bitstreams: 0 | en |
| dc.description.provenance | Made available in DSpace on 2023-07-19T16:25:15Z (GMT). No. of bitstreams: 0 | en |
| dc.description.tableofcontents | Table of Contents
Oral Examination Committee Approval i Acknowledgements ii Chinese Abstract iii Abstract iv Table of Contents vi List of Figures x List of Tables xi List of Acronyms and Abbreviations xii Chapter 1 Introduction 1 1.1 Prevalence 2 1.2 Young Carers Are Hidden 5 1.3 Aim of This Thesis 7 1.4 Theoretical Strands 10 1.5 Outline of the Chapters 11 Chapter 2 Literature Review 13 2.1 Introduction 13 2.2 The Context of Young Caring 14 2.3 The Research on Young Carers of Parents with Mental Illness 17 2.4 Systematic Review of the Literature 18 2.4.1 Search Strategy 19 2.4.2 Overview 23 2.4.3 The Impact of Young Carers’ Daily Lives 24 2.4.4 Coping Strategies 28 2.4.5 Young Carers’ Wishes for Social Support 30 2.4.6 Summary 33 2.5 Research Context in East Asia 35 2.5.1 The Conception of Mental Illness 36 2.5.2 The Social Stigma 37 2.5.3 Familialism 39 2.5.4 Children Becoming Young Carers 42 2.5.5 The Policy Context 45 2.6 Research Context in Taiwan 46 2.6.1 Young Carers as a Hidden Population 46 2.6.2 The Research of Young Carers of Parents with Mental Illness 48 2.6.3 The Policy Context 49 2.7 What We Know and Do Not Yet Know 51 2.8 Conclusion 52 Chapter 3 Research Framework and Methods 55 3.1 Introduction 55 3.2 Research Framework 56 3.2.1 Social Exclusion 57 3.2.2 Social Constructionism 61 3.2.3 Research Questions 62 3.3 Methodology 64 3.3.1 Qualitative Approach 65 3.3.2 Reflexivity 65 3.4 Participants 68 3.4.1 Recruitment 68 3.4.2 Inclusion of Criteria 70 3.4.3 The Sample 72 3.4.4 Context 74 3.5 Ethical Considerations 75 3.5.1 Obtaining Ethical Approval 75 3.5.2 Informed Consent 76 3.5.3 Confidentiality 77 3.6 Data Collection 77 3.7 Data Analysis 78 3.8 The Quality of Qualitative Research 81 3.8.1 Trustworthiness 81 3.8.2 Flexibility 83 3.9 Summary 84 Chapter 4 Results 87 4.1 Theme 1 Children Becoming Young Carers 88 4.1.1 The Awareness of the Parent’s Mental Illness 89 4.1.2 Undertaking Caring Responsibilities 94 4.1.3 Family Relationships 102 4.1.4 School Life 112 4.2 Theme 2 The Impact of Having a Parent with Mental Illness 120 4.2.1 Bittersweet Memories 121 4.2.2 Feelings of Childhood Life Falling Apart 125 4.2.3 Health and Well-Being 130 4.2.4 Coping Strategies 136 4.2.5 A Long-Term Caring Commitment 147 4.3 Theme 3 Wishes for Social Support 153 4.3.1 Medical Information 154 4.3.2 Mental Health and Social Services 158 4.3.3 School Support and Public Education 165 4.4 Theme 4 Advice for a Young Carer like me 170 4.5 Summary 173 Chapter 5 Discussion and Implications 175 5.1 Introduction 175 5.1.1 Research Question 1: How Do Adults Who Had Cared for a Parent Describe Their Caring Experiences through Childhood? 176 5.1.2 Research Question 2: How Do Adults Who Had Cared for a Parent Describe the Impact of Having a Parent with Mental Illness in Their Everyday Lives? 181 5.1.3 Research Question 3: What Social Support Did Adults Who Had Cared for a Parent Require during Childhood? 187 5.1.4 Research Question 4: What Advice Do Adults Who Had Cared for a Parent Give to Young Carers Living through the Difficulty? 191 5.2 Unique Contribution to Social Work Knowledge 192 5.3 Strengths and Limitations of the Research 196 5.4 Implications for Practice and Policy 199 5.5 Further Research 204 5.6 Reflections 205 5.7 Conclusion 208 Appendices 210 Appendix 1: Summary of Reviewed Literature 210 Appendix 2: Study Advertisement 216 Appendix 3: Ethical Approval 218 Appendix 4: Consent to Participate 219 Appendix 5: Semi-Structured Interview Schedule 224 References 225 | - |
| dc.language.iso | en | - |
| dc.subject | 質性研究 | zh_TW |
| dc.subject | 父母罹患精神疾病 | zh_TW |
| dc.subject | 兒少家庭照顧者 | zh_TW |
| dc.subject | 責任 | zh_TW |
| dc.subject | 童年 | zh_TW |
| dc.subject | young carers | en |
| dc.subject | qualitative research | en |
| dc.subject | childhood | en |
| dc.subject | parental mental illness | en |
| dc.subject | responsibilities | en |
| dc.title | 在照顧中長大：臺灣兒少家庭照顧者照顧精神疾病父母的回溯性研究 | zh_TW |
| dc.title | Growing up with Caregiving: A Retrospective Study of Being Young Carers of Parents with Mental Illness in Taiwan | en |
| dc.type | Thesis | - |
| dc.date.schoolyear | 111-2 | - |
| dc.description.degree | 博士 | - |
| dc.contributor.oralexamcommittee | 熊秉荃;Ciwang Teyra;蔡培元;葉崇揚 | zh_TW |
| dc.contributor.oralexamcommittee | Ping-Chuan Hsiung;Ciwang Teyra;Pei-Yuen Tsai;Chung-Yang Yeh | en |
| dc.subject.keyword | 兒少家庭照顧者,父母罹患精神疾病,質性研究,童年,責任, | zh_TW |
| dc.subject.keyword | young carers,parental mental illness,qualitative research,childhood,responsibilities, | en |
| dc.relation.page | 245 | - |
| dc.identifier.doi | 10.6342/NTU202300934 | - |
| dc.rights.note | 同意授權(限校園內公開) | - |
| dc.date.accepted | 2023-06-07 | - |
| dc.contributor.author-college | 社會科學院 | - |
| dc.contributor.author-dept | 社會工作學系 | - |
| dc.date.embargo-lift | 2024-01-01 | - |
| 顯示於系所單位： | 社會工作學系 | |
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