最後一哩路，你有不受苦的選擇—安寧緩和醫療團隊照護身、心、靈的需求

Abstract

本文係屬深度採訪報導，2017年2月至6月間，實地走訪臺灣北部某醫學中心的緩和醫療病房，訪談病人、家屬與安寧緩和醫療團隊成員，並從中觀察三種角色之間的實際互動。 報導整理受訪病人接受安寧緩和醫療後的症狀變化與心靈感受，也記錄受訪家屬在照顧期間承擔的情緒壓力，進一步採訪安寧緩和醫療團隊，了解醫師、護理師、心理師、宗教師、藝術治療師、音樂治療師等專業人員如何一同合作，為受苦的病家解決身體、心理與靈性上的困擾，協助其圓滿善終的心願。 藉由病家真實案例的呈現，凸顯安寧緩和醫療尊重生命的照護理念，破除安寧緩和醫療等同於放棄治療的迷思。

This is an in-depth reporting which was conducted by interviewing patients, family members, and hospice palliative care team members recruited during 2017 February and 2017 June from a university-affiliated medical center located at Northern Taiwan. Field observation was also conducted by targeting at the interactions between the patients, family members, and hospice palliative care team members. This in-depth report was conducted by collecting and analyzing the physical, psychological and spiritual change after receiving hospice palliative care, and also investigated the emotional stress of the family members while taking care of the patients. Furthermore, by interviewing hospice palliative care team members, how physicians, nurses, clinical psychologists, spiritual care workers, art therapists, and music therapists worked together to help patients relieve physical, psychological, and spiritual sufferings, and achieve good death was examined. By the following narrative stories, the concept of hospice palliative care was highlighted, in expectation to clearly pointing out that hospice palliative care is not the same as getting rid of life and medical care, but taking care of the patients with physical, psychological, and spiritual sufferings, and respecting life in every way.