中部某醫學中心之護理人員的臨終兒童照護經驗

Ya-Huei Chen; 陳雅惠

請用此 Handle URI 來引用此文件： http://tdr.lib.ntu.edu.tw/jspui/handle/123456789/32209

完整後設資料紀錄

DC 欄位	值	語言
dc.contributor.advisor	陳月枝(Yueh-Chih Chen)
dc.contributor.author	Ya-Huei Chen	en
dc.contributor.author	陳雅惠	zh_TW
dc.date.accessioned	2021-06-13T03:36:51Z	-
dc.date.available	2007-08-02
dc.date.copyright	2006-08-02
dc.date.issued	2006
dc.date.submitted	2006-07-27
dc.identifier.citation	中文部分杜敏世(1988)· 護理研究· 台北：華杏。阮玉梅(2001)· 護理人員的角色功能· 於蘇麗智、阮玉梅、林明珍、張淑珍、羅筱芬合著，最新護理學導論(207-220頁)· 台北：華杏。林文娟、劉育系、謝錦鑾(2001)· 最新護理學導論· 台北：永大。林育如(2004)· 癌症青少年靈性需求內涵與靈性安適情形之探討· 未發表的碩士論文· 台北：國立台灣大學護理研究所。林麗英(1988)· 護理人員的護理技能、溝通技巧與行政能力·榮總護理，5(3)，283-287。胡文郁、邱泰源、釋慧敏、陳慶餘、陳月枝(1999)• 從醫護人員角度探討癌末病人之靈性需求·台灣醫學，3(1)，8-18。吳素月(2003)·影響護理人員對癌末病患善終照護自我效能之相關因素研究· 未發表的碩士論文· 花蓮：慈濟大學護理研究所。徐宗國(2004)· 質性研究概論· 台北：巨流。紐則誠(2003)· 醫護生死學· 台北：華杏。畢恆達(2005) · 教授為什麼沒告訴我· 台北：學富。陳月枝等合譯（1998）· 小兒科護理學上下冊· 台北：華杏。陳月枝（2000）· 質性護理研究方法· 台北：護望。陳月枝(2002)· 護理學導論· 台北：偉華。陳月枝 (2004) · 兒童臨終照護· 於胡文郁等(2004)· 臨終照護· 國立空中大學印行。陳盛文(2003)· 安寧護理人員的專業角色調適· 未發表的碩士論文·南華大學生死學系。莊榮彬(2005)·安寧共同照護簡介· 安寧療護雜誌，10(1)，39-43。許麗齡(2001)· 護理行動之原動力－護理理念· 護理雜誌，5(48)，69-73。萬文隆(2004)· 深度訪談在質性研究中的應用· 生活科技教育月刊，37(4)，17-23。楊克平、杜友蘭、毛新春、鄭曉江、杜異珍、翁益強、秦燕、余幸澄、何麗齡(2001)· 安寧與緩和療護學· 台北：偉華。趙可式(2001) ·讓我靠近你－認識兒童安寧療護· 安寧照護會訊， 40，13-16。黃琪璘(1991) ·台北市立綜合醫院醫師對死亡及瀕死態度之研究· 未發表的碩士論文· 台北：國立台灣師範大學衛生教育研究所。盧小珏(1991) ·由角色概念探討某醫學中心新進護理人員對護理專業之使命感· 榮總護理，8(4)，437-444。顧艷秋(2001) · 護理人員的死亡態度· 安寧療護雜誌，6(2)，33-37。顧艷秋(1999) ·護理人員照護瀕死病患行為及其相關因素之研究· 國立台灣師範大學衛生教育博士論文。 Israel, O. (2000)· 不想活下去的孩子（高慧芬譯），兒童及青少年對死亡的理解與感受（114-153頁）·台北：心理。 Lugton, J., ＆ Kindlen, K. (2003)· 安寧照護－護理角色 (陳玉婷、陳施妮、陳瑞貞、楊翠雲、賴才雅譯)· 台北：五南。 Kubler- Rose, E.（2002）·你可以更靠近我（林瑞堂譯）· 台北：張老師文化。行政院衛生署：（2005a，2月10日）•2005年8月30日取自http://www.doh.gov.tw/statistic/data/死因摘要/94年/表14.xlsistics. 行政院衛生署：（2005b，5月4日）•2005年8月30日取自 http://www.doh.gov.tw/ufile/Doc/200504 英文部分 Barbara, J., ＆Valerie, H. (2004). Hospital-based palliative teams improve the insight of cancer patients into their disease. Palliative Medicine, 18, 46-52. Brockopp, D. Y., King D. B., ＆Hamilton, J. E. (1991). The dying patient: A comparative study of nurse care giver character. Death Studies, 15, 245-258. Brunner, L.S. et al (1969). Textbook of medical surgical nursing (2nd Ed., pp. 39-40) New York: J. B. Lippincott . Carter, B. (2004). Circumstances surrounding the deaths of hospitalized children: Opportunities for pediatric palliative care. Pediatrics, 114 (3), 361-365. Costell, J., ＆Brook, A.T. (2000). Children’s nurses’ experiences of caring for dying children in hospital. Pediatrics Nursing,12 (6), 28-32. Denger, L.F., Gow, C. M., ＆Thompson, L. A. (1991). Critical nursing behaviors in care for the dying. Cancer Nursing, 14, 246-253. Golub, S., ＆Reznikoff, M. (1971). Attitudes toward death: A comparison of nursing students and graduate nurses. Nursing Research, 20 (6), 137-139. Gowan, D. (2003). End-of-life issues of children, Pediatric Transplantation, 7 (33), 40-43. Hilden, H.M., Louhiala, P., Honkasalo, M.L.,＆Palo, J. (2004). Do hospital based palliative teams improve care for patients or family at the end of life, Journal of Pain Symptom Manage, 23, 96-106. Hollye, H. J. (2005). Ethics in pediatric end-of-life care: A nursing perspective. Journal of Pediatric Nursing, 20(5), 360-369. Jennings, P. D. (2005). Providing pediatric palliative care through a pediatric supportive care. Pediatric Nursing, 31(3), 195-199. Johnson, E. L. (1986). Attitudes toward death and dying among student nurses as affected by a specialized curriculum. Oregan State University. Judy, A. R. (2002). New initiatives in end-of-life care. Pediatric Nursing,28(3), 292. Keck, V. E., ＆ Walther, L. S. (1977). Nurse encounters with dying and nondying patients. Nursing Research, 26(6), 465-469. Kubler- Rose, E. (1969). On death and dying. New York: Macmillan. O’Leary, N., Flynn, J., Maccallion, A.,Walsh, E., ＆Mcquillian, R. (2006). Paediatric palliative care delivered by an adult palliative care service. Palliative Medicine, 20, 433-437. Quint, J. C. (1967). The nurse and the dying patient. New York: Macmillan. Roth, L. (2005, May 3). Hospice: Philosophy of care and appropriate utilization. Retrieved July 1, 2005, from http://www. uptodateonline.com /application/topic.asp Sandelowski, M. (1986). The problem of rigor in qualitative research. Advance of Nursing Science, 8(3), 27-37. Williams, C. A. (1982). Factor which influence how nurses communicate with cancer patient. Journal of Advanced Nursing, 16, 677-688.
dc.identifier.uri	http://tdr.lib.ntu.edu.tw/jspui/handle/123456789/32209	-
dc.description.abstract	本研究的目的是瞭解護理人員的臨終兒童照護經驗，此研究以質性研究之低結構性訪談指引，訪談中部某醫學中心之兒科病房與兒科加護病房之護理人員共16位，訪談時間介於50至100分鐘，平均為61分鐘，將訪談內容撰寫成描述性資料，運用內容分析法將描述性資料作歸類分析共得1218個行為單元。將行為單元作量化分析，在臨終兒童照護經驗內涵方面共有四類，分別是：令人惋惜的臨終照護佔49.84﹪、值得欣慰的臨終照護佔37.44﹪、懇切的臨床實務建言佔8.46﹪、企盼中的臨床照護藍圖佔2.27﹪。令人惋惜的臨終照護又分為五類，分別是：社會民情的牽絆、對醫療政策的無奈、組織團隊無法同心、病童與家屬的心結及醫療照護活動的傷害。值得欣慰的臨終照護又分為六類，分別是：舒適的身體照護、窩心的情緒支持、深植人心的靈性照護、實用的照護指導、圓融的情境因素、溫暖的追蹤照護等因素。懇切的臨床實務建言分為三類，分別是：涵括民意的醫療、專業照護的充電、醫療團隊研討營。企盼中的臨床照護藍圖分為三類，分別是：照護者的醒思、團隊合作一致、兒科病房勝任臨終照護。本研究資料提供護理教育、行政、研究、臨床實務參考，並促進兒科護理人員之臨終照護能力。	zh_TW
dc.description.abstract	The purpose of this study was to investigate nurses’ experiences of caring for terminally ill children at a medical center in central Taiwan. The researcher conducted a descriptive qualitative study through semi-structured interviews. Sixteen nurses who fit the inclusion criteria and worked in either the pediatric ward or the pediatric intensive care unit were interviewed. Each interview lasted for 50-100 minutes (average: 61 minutes). Tape-recorded transcribed into narrative data. After analyzing the data using a content analysis approach, the researcher derived 1218 behavior units. Using quantitative analysis, the researcher classified these behavior units into 4 categories in terms of caring for terminally ill children, including inadequate nursing care (49.84%); adequate nursing care (37.44%); care strategies (8.46%) and future plans (2.27%). There were 5 types of inadequate nursing care, including public opinion, medical policy, teamwork, sick children and their families, and medical treatment and nursing care. There were 6 types of adequate nursing care, including physiological care, motion support, spiritual care, hygiene education, situation factors, and follow-up care. In addition, there were 3 types of strategies, including medical policy, educational training, and meetings of doctors and nurses. Furthermore, there were 3 types of future plans, including professional assessment, team cooperation, and competent terminal care provided by pediatric wards. It is hoped that the results of this study will not only benefit nursing education, administration, research and clinical practice, but also encourage pediatric nurses who provide terminal care.	en
dc.description.provenance	Made available in DSpace on 2021-06-13T03:36:51Z (GMT). No. of bitstreams: 1 ntu-95-R92426018-1.pdf: 708165 bytes, checksum: 997d44f308094f4311068668f94486c0 (MD5) Previous issue date: 2006	en
dc.description.tableofcontents	中文摘要.................................................Ⅰ 英文摘要.................................................Ⅱ 目錄Ⅳ 第一章緒論...............................................1 第一節研究動機...........................................1 第二節研究目的...........................................3 第三節研究問題...........................................3 第四節名詞界定...........................................4 第二章文獻查證...........................................5 第一節護理專業...........................................5 第二節護理人員面對的死亡態度.............................8 第三節兒童臨終照護......................................11 第四節安寧共同照護......................................20 第五節相關研究..........................................22 第三章研究方法..........................................24 第一節質性研究之訪談法..................................24 第二節研究設計..........................................29 第三節研究對象..........................................30 第四節研究場所..........................................31 第五節資料收集..........................................31 第六節資料分析..........................................35 第七節嚴謹度............................................42 第八節倫理考量..........................................44 第四章研究結果與分析....................................45 第一節研究個案之基本資料................................45 第二節臨終兒童照護之經驗................................47 第五章討論..............................................63 第一節研究結果之討論....................................63 第二節研究概念之形成....................................67 第三節研究與相關研究之比較..............................69 第六章結論與建議........................................71 第一節結論..............................................71 第二節研究之限制........................................73 第三節護理上之應用與建議................................74 參考資料.................................................76 附錄附錄一研究同意書........................................83 附錄二個案基本資料......................................84 附錄三訪談指引專家名單..................................85 附錄四原始訪談指引及專家意見............................86 附錄五研究倫理委員會審查通過函..........................88 附錄六訪談指引內容......................................89 附錄七分析範例..........................................90 附錄八內容分析數碼化簡寫意義...........................104 表目錄表4-1 個案基本資料.......................................46 表4-2 個案之行為單元數分類...............................47 表4-3 臨終兒童照護現況之行為單元數.......................48 圖目錄圖5-1 概念架構圖.........................................68
dc.language.iso	zh-TW
dc.subject	臨終照護	zh_TW
dc.subject	護理人員	zh_TW
dc.subject	臨終兒童	zh_TW
dc.subject	nurse	en
dc.subject	caring for terminally ill children	en
dc.subject	terminally ill children	en
dc.title	中部某醫學中心之護理人員的臨終兒童照護經驗	zh_TW
dc.title	Nurses’ Experiences of Caring for Terminally Ill Children at a Medical Center in Central Taiwan	en
dc.type	Thesis
dc.date.schoolyear	94-2
dc.description.degree	碩士
dc.contributor.coadvisor	林東燦(Dong-Tsamn Lin),駱麗華(Li-Hua Lo)
dc.contributor.oralexamcommittee	#VALUE!
dc.subject.keyword	護理人員,臨終兒童,臨終照護,	zh_TW
dc.subject.keyword	nurse,terminally ill children,caring for terminally ill children,	en
dc.relation.page	105
dc.rights.note	有償授權
dc.date.accepted	2006-07-27
dc.contributor.author-college	醫學院	zh_TW
dc.contributor.author-dept	護理學研究所	zh_TW
顯示於系所單位：	護理學系所

文件中的檔案：

檔案	大小	格式
ntu-95-1.pdf 未授權公開取用	691.57 kB	Adobe PDF

顯示文件簡單紀錄

系統中的文件，除了特別指名其著作權條款之外，均受到著作權保護，並且保留所有的權利。