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完整後設資料紀錄
DC 欄位 | 值 | 語言 |
---|---|---|
dc.contributor.advisor | 蕭妃秀 | zh_TW |
dc.contributor.advisor | Fei-Hsiu Hsiao | en |
dc.contributor.author | 凃誼函 | zh_TW |
dc.contributor.author | Yi-Han Tu | en |
dc.date.accessioned | 2021-07-11T15:12:11Z | - |
dc.date.available | 2022-08-16 | - |
dc.date.copyright | 2019-08-28 | - |
dc.date.issued | 2019 | - |
dc.date.submitted | 2002-01-01 | - |
dc.identifier.citation | 史柏年、彭振、馬燁、董小源(2014)・唇顎裂患兒照顧者的社會性別分析・社會工作(2),84-91。
李佳苓、劉立凡、陳淑馨、林綉君(2014)・探討照顧管理服務成效與主要照顧者照顧負荷之相關性研究・護理雜誌,61(1),64-73。 彭佳鎂、何慧敏(2014)・幼兒性別角色概念之探究・人類發展與家庭學報,16,24-51。 邱啟潤、許淑敏、吳瓊滿(2002)・主要照顧者負荷、壓力與因應之國內研究文獻回顧・醫護科技學刊,4(4),273-290。 陳瑋婷(2012)・親職壓力、社會支持與生活品質之關係研究:身心障礙者家長與普通家長之比較,特殊教育研究學刊,37(3),1-26。 陳昱瑞(主編)(2002)・顱顏畸形學・台北市:合記。 張仁和、林以正、黃金蘭(2011)・中文版「止觀覺察注意量表」之信效度分析・測驗學刊,235-260。 黃璉華(1995)・生育先天性缺陷兒對家庭的影響・中華公共衛生雜誌,14(4),299-313。 楊生勇、謝洪波(2016)・社會性別視角下女性照顧現象研究現象研究-對農村唇顎裂兒童照顧群體的訪談・中南民族大學學報人文社會科學版,36(5),115-119。 翟堃、楊雄、信燕華、周忠偉、馬堅、朱普芳、王怡瑞、黃永清(2013)・唇顎裂患兒父母生活質量及其影響因素研究・華西口腔醫學雜誌,31(3),279-282。 龍衛平、翦新春、殷憲華(2013)・初次住院唇顎裂患兒父母生活質量的調查研究,口腔醫學,33(1),61-63。 鄭雅莉(2011)・特殊嬰幼兒家庭支持與需求之調查研究・高雄師大學報:教育與社會科學類,31,3-27。 羅慧夫顱顏基金會(2000)・唇顎裂照顧須知・台北:學者。 Adeyemo, W. L., James, O., & Butali, A. (2016). Cleft lip and palate: Parental experiences of stigma, discrimination, and social/structural inequalities. Annals of Maxillofacial Surgery, 6(2), 195-203. Al-Ghamdi, M., Bayoumi, A., & Zahran, M. (2016). Quality of Life of Cleft Lip and/or Palate Patients’ Caregivers in Jeddah. 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dc.identifier.uri | http://tdr.lib.ntu.edu.tw/jspui/handle/123456789/78686 | - |
dc.description.abstract | 背景: 唇/顎裂(Cleft Lip and/or Palate)是幼童最常見的先天性顏面缺陷,因唇顎裂治療過程的反覆追蹤需至成年,照顧者承受身心與社會層面的負擔及壓力,然而目前缺乏了解照顧者的生活品質以及影響因素。
目的: 探討唇/顎裂幼童主要照顧者生活品質的現況,照顧負荷、正念特質程度、憂鬱和生活品質之相關。 方法:本研究採橫斷式、相關性研究設計,以北部某區域醫院顱顏中心門診為收案場所,共收案一百位唇/顎裂幼童主要照顧者,幼童年齡介於三個月至五歲,已完成第一次手術,採立意取樣,使用結構式問卷進行資料收集,包括:「基本資料表」、「家庭衝擊量表」(Impact on Family Scale, IFS)、「病人健康狀況問卷中文版量表(PHQ-9)」、「親職壓力量表簡式版(Parenting Stress Index: Short Form)」、「中文版止觀覺察注意量表(Chinese Mindful Attention Awareness Scale, CMAAS)」。 結果:研究發現62%的照顧者家庭整體受到衝擊,且大部分照顧者(88%)出現臨床傾向的憂鬱症狀困擾。相較於台灣,中國大陸照顧者在家庭整體衝擊、財務、社會層面皆出現較差的生活品質。照顧者基本屬性中的人口學變項、唇顎裂幼童基本屬性中的人口學、疾病變項及憂鬱和其生活品質無顯著相關。多元迴歸分析發現親職壓力中越高程度的「親子失功能」、「困難兒童」壓力、初次是從「產前/唇顎裂諮詢門診」獲得資訊來源、越低正念特質程度,與較高的家庭整體衝擊相關; 在財務支持面向,初次是從「產前/唇顎裂諮詢門診」獲得資訊來源、家中罹病幼童有「其他手足」感受到財務負荷較高; 在個人層面衝擊,「正念特質程度」越高的照顧者,對個人層面影響越低; 社會關係層面,照顧者感知親職壓力中「困難兒童」越高,對社會層面衝擊越大;「正念特質程度」越高的照顧者,對社會層面衝擊則越低; 初次從「產前/唇顎裂諮詢門診」獲得資訊來源的照顧者,在應對與因應能力層面衝擊越高。 結論:本研究結果發現影響唇顎裂幼童主要照顧者家庭整體生活品質的負面因子包含台灣和中國大陸不同的社會背景和醫療資源、罹病孩童有「其他手足」,與親職壓力之「親子失功能」和「困難兒童」面向,未來針對上述負面因子,了解影響照顧者生活品質的因素,提供長期照護諮詢,同時強化其正念程度(保護因子),以提升照顧者的生活品質。除此之外,還需要提供照顧者預防憂鬱的介入措施。 | zh_TW |
dc.description.abstract | Background: Cleft lip and/or palate are the most common congenital orofacial defect. Children with CLP need to receive a long-term treatment and follow up till adulthood. Therefore, their primary caregivers undertake the great body-mind-spirit burden and stress. However, there is a lack of study exploring their quality of life and associated factors.
Purpose/Objectives: This study aimed to explore the quality of life of caregivers, the correlations of caregiver’s burden, mindfulness trait, depression, with quality of life in the primary caregivers of children with cleft lip and/or palate. Methods: This study adopted the cross-sectional correlational design. Primary caregivers’ (N=100) of children with cleft lip and/or palate were recruited from the outpatient department of cleft lip and palate center at the general hospital in north Taiwan. With purposive sampling method, total 100 primary caregivers of children completing the first surgery on cleft lip and/or palate and aged at 3 months to 5 years old. Data are collected by using the structured questionnaire. Questionnaire scales include: Basic characteristic information, Impact on Family Scale(IFS), Patient Health Questionnaire(PHQ-9), Parenting Stress Index: Short Form, and Chinese Mindful Attention Awareness Scale(CMAAS). Results: The results indicated that 62% of caregiver reported the significant impacts of children’s illness on their family in general. Moreover, most caregivers’ depressive level achieved the clinical depression. Compared with Taiwan, caregivers from China appeared to have a lower quality of life indicating by significant overall total impact in family, financial impact, and disruption of social relations. There were no significant correlations of caregivers’ quality of life with both caregivers’ and children’s demographic data, children’s disease factors, and caregivers’ depression. Multiple regression analysis indicated that the higher overall total impacts in family were associated with higher levels of parenting stress (parent–child dysfunctional interactions and care for difficult child), in the caregivers who obtaining the information from the prenatal/cleft lip and palate clinic for their first time consultation and lower mindfulness trait. From the aspect of financial impact, the greater financial impacts were correlated with those caregivers who obtained the information from the prenatal/cleft lip and palate clinic for the first time consultation and having other siblings in the family. The personal impact was associated with higher mindfulness trait. The greater disruption of social relations was associated with care for difficult child and lower mindfulness trait. The greater impact on caregivers’ coping was found in the caregivers who obtained the information from the prenatal/cleft lip and palate clinic for the first time consultation. Conclusion/Implications for practice: This study concludes that the negative factors of parenting stress associated with caregivers’ quality of life are the different social background and medical resources, children having other siblings, the parent–child dysfunctional interaction and care for difficult child with cleft lip and/or palate. Future interventions aiming to reducing these negative factors, enhancing mindfulness levels (protection factor), and providing the long-term care consultation can be helpful to improve quality of life for caregivers. Moreover, depression prevention program needs to be developed for caregivers. | en |
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dc.description.tableofcontents | 中文摘要 i
英文摘要 iii 圖目錄 viii 表目錄 ix 第一章 緒論 1 第一節 研究動機及重要性 1 第二節 研究目的 3 第三節 名詞解釋及操作型定義 4 第二章 文獻探討 6 第一節 唇/顎裂之病因、分類與治療 6 第二節 唇/顎裂主要照顧者生活品質的現況以及幼童對生活品質的影響 9 第三節 照顧負荷、憂鬱與正念特質程度影響唇/顎裂照顧者和生活品質之相關 15 第三章 研究方法 22 第一節 研究架構 22 第二節 研究設計 23 第三節 研究對象 23 第四節 研究假設 24 第五節 研究工具 25 第六節 研究步驟 27 第七節 資料處理與分析 29 第八節 研究倫理考量 30 第四章 研究結果 31 第一節 了解唇/顎裂幼童主要照顧者及唇/顎裂幼童人口學、疾病特性 31 第二節 主要照顧者生活品質、憂鬱、照顧負荷以及正念特質程度之現況 34 第三節 主要照顧者之人口學特性及唇/顎裂幼童之人口學、疾病特性與主要照顧者照顧負荷、正念特質程度、憂鬱與生活品質之關聯性 37 第四節 影響主要照顧者生活品質之主要影響因素 40 第五章 討論 43 第一節 主要照顧者和唇/顎裂幼童的人口學、疾病特性和生活品質之現況 43 第二節 影響照顧者整體生活品質以及各層面的主要因素 46 第六章 結論與建議 53 第一節 研究結論 53 第二節 研究限制 54 第三節 研究應用與建議 54 參考文獻 56 附錄一 基本資料表 67 附錄二 中文版家庭衝擊量表Impact on Family Scale(IFS) 68 附錄三 病人健康狀況問卷(PHQ-9)中文版量表 70 附錄四 親職壓力量表簡式版(PSI/SF) 71 附錄五 中文版止觀覺察注意量表(CMAAS) 74 附錄六 親職壓力量表簡式版量表使用同意函 75 | - |
dc.language.iso | zh_TW | - |
dc.title | 唇顎裂幼童主要照顧者的照顧負荷、正念特質程度,憂鬱和生活品質之相關探討 | zh_TW |
dc.title | The Correlations of Caregivers’ Burden, Mindful trait, Depression, with Quality of Life Among Children with Cleft Lip and Palate | en |
dc.type | Thesis | - |
dc.date.schoolyear | 107-2 | - |
dc.description.degree | 碩士 | - |
dc.contributor.oralexamcommittee | 陳國鼎;曾頌惠 | zh_TW |
dc.contributor.oralexamcommittee | Philip Kuo-Ting Chen;Sung-Hui Tseng | en |
dc.subject.keyword | 唇/顎裂幼童,主要照顧者,生活品質,照顧負荷,親職壓力,正念,憂鬱, | zh_TW |
dc.subject.keyword | Cleft Lip and/or Palate children,caregiver,quality of life,care burden,parenting stress,mindfulness trait,depression, | en |
dc.relation.page | 75 | - |
dc.identifier.doi | 10.6342/NTU201902436 | - |
dc.rights.note | 未授權 | - |
dc.date.accepted | 2019-08-05 | - |
dc.contributor.author-college | 醫學院 | - |
dc.contributor.author-dept | 護理學研究所 | - |
顯示於系所單位: | 護理學系所 |
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