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完整後設資料紀錄
DC 欄位 | 值 | 語言 |
---|---|---|
dc.contributor.advisor | 黃璉華 | |
dc.contributor.author | Shu-Yu Lin | en |
dc.contributor.author | 林書羽 | zh_TW |
dc.date.accessioned | 2021-06-15T02:40:12Z | - |
dc.date.available | 2009-09-15 | |
dc.date.copyright | 2009-09-15 | |
dc.date.issued | 2009 | |
dc.date.submitted | 2009-08-11 | |
dc.identifier.citation | 參考文獻
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dc.identifier.uri | http://tdr.lib.ntu.edu.tw/jspui/handle/123456789/44106 | - |
dc.description.abstract | 就晚發型遺傳性神經退化性疾病而言,因其具有不可治癒性及無法預防性的特點,在遺傳諮詢的相關研究探討上提供患者或其家族成員遺傳諮詢變成為一個相當艱鉅的課題,以往大都會著重在發生症狀前基因檢測的道德倫理相關議題,或檢測前後所引發的情緒上衝擊與障礙等問題。近年來則開始越來越重視患者極具有血緣關係之家屬可能會遭遇的心理衝擊。
本研究目的為瞭解晚發型遺傳性神經退化疾病家族的心理調適及醫療上的決策衝突,並探討相關影響因素,含個案基本屬性與疾病特性。採橫斷式調查性研究,對象為北部某醫學中心神經內科門診,以立意取樣方式所收集符合條件之個案,經個案同意後以結構試問卷訪談收集資料。結構試問卷包括:「個案基本資料」、「遺傳資訊的心理調適量表」、「決策衝突量表」。將所收集的資料以SPSS / Window15.0進行統計分析。 研究結果顯示家族具有晚發型遺傳性神經退化疾病之個案的心理調適狀況與醫療上決策衝突之間具顯著相關性。並推論往後在提供患有晚發型遺傳性神經退化疾病之患者及其家族成員遺傳諮詢時,所需加強關注、提供之知識訊息或支持,以減低其在面臨醫療行為時做出錯誤判斷抉擇或選擇逃避拒絕接受的情形發生。 | zh_TW |
dc.description.abstract | To patients or their families with late-onset hereditary neurodegenerative disease, it is a difficulty course for genetic counseling, because of its incurable and no effective prevention. Previous studies have been focused on ethical of asymptom genetic test or emotional concerns. However, recent studies take more and more psychological impact of patients and their families seriously.
The propose of this study was to analyze and investigate the psychological adaptation and decisional conflict of medical treatment in late-onset hereditary neurodegenerative disease family, and the correlation between client’s demographic data, and characteristic of the disease. The participants were recruited for this cross-sectional and correlational study, from a neurological department at a medical center in northern Taiwan, using purposive sampling. With informed consent, data were collected with structured questionnaires including demographic data, characteristic of the disease, psychological adaptation of genetic information scale, and decisional conflict scale. Data was analyzed using SPSS/Window 15.0. The result of this study indicated the correlation between psychological adaption and decisional conflict in late-onset hereditary neurodegenerative disease family. It is imperative to provide a quality genetic counseling or support to late-onset heredity neurodegenerative disease family, and to help client make necessary decisions and better adaptation. | en |
dc.description.provenance | Made available in DSpace on 2021-06-15T02:40:12Z (GMT). No. of bitstreams: 1 ntu-98-P96448007-1.pdf: 536630 bytes, checksum: 8b35578785fb391871ce0d764436bbd4 (MD5) Previous issue date: 2009 | en |
dc.description.tableofcontents | 摘要 III
第一章 緒論 1 第一節 研究背景與動機 1 第二節 研究目的 3 第三節 名詞定義 4 第二章 文獻探討 6 第一節 晚發型遺傳性神經退化疾病 6 第二節 心理調適 16 第三節 決策衝突 28 第四節 晚發型遺傳性神經退化疾病家族的心理調適與決策衝突 41 第三章 研究方法 42 第一節 研究架構 42 第二節 研究對象 43 第三節 研究工具 44 第四節 資料收集過程 47 第五節 資料處理與統計分析 48 第六節 研究倫理考量 49 第四章 研究結果 50 第一節 個案基本特性描述 50 第二節 個案的心理調適情形 58 第三節 個案決策衝突 64 第四節 個案對遺傳資訊的心理調適之影響因素 69 第五節 個案決策衝突的影響因素 86 第六節 遺傳資訊的心理調適與決策衝突的相關性 100 第五章 討論 103 第一節 影響晚發型遺傳性神經退化疾病家族心理調適的相關因素 103 第二節 影響晚發型遺傳性神經退化疾病家族決策衝突的相關因素 104 第三節 晚發型遺傳性神經退化疾病家族的心理調適與決策衝突關係與影響 106 第六章 結論與建議 109 第一節 結論 109 第二節 遺傳諮詢上的應用與建議 110 第三節 研究限制 112 參考文獻 113 附錄一 受試者說明書 127 附錄二 個案基本資料 128 附錄三 遺傳資訊心理調適量表 130 附錄四 決策衝突量表 132 | |
dc.language.iso | zh-TW | |
dc.title | 晚發型遺傳性神經退化疾病家族的心理調適及決策衝突 | zh_TW |
dc.title | Psychological Adaptation and Decisional Conflict in Late-onset Hereditary Neurodegenerative Disease Family | en |
dc.type | Thesis | |
dc.date.schoolyear | 97-2 | |
dc.description.degree | 碩士 | |
dc.contributor.oralexamcommittee | 吳英璋,李銘仁 | |
dc.subject.keyword | 晚發型遺傳性神經退化疾病,心理調適,決策衝突, | zh_TW |
dc.subject.keyword | late-onset heredity neurodegenerative disease,psychological adaptation,decisional conflict., | en |
dc.relation.page | 132 | |
dc.rights.note | 有償授權 | |
dc.date.accepted | 2009-08-12 | |
dc.contributor.author-college | 醫學院 | zh_TW |
dc.contributor.author-dept | 分子醫學研究所 | zh_TW |
顯示於系所單位: | 分子醫學研究所 |
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